Personal Accounts of Living with Autism

 
Reading List
 
Personal Accounts of Living with Autism

 

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Asperger’s From the Inside Out: A Supportive and Practical Guide for Anyone with Asperger’s Syndrome

Michael John Carley, Ed.D, Peter Gerhardt

Amazon.com Price: $10.17


Michael John Carley was diagnosed with Asperger’s Syndrome at thirty-six, when his young son received the same diagnosis. He is now the Executive Director of GRASP, the world’s largest Asperger’s organization.

This fascinating book reveals his personal experience with the confusion and trauma associated with this condition, and offers insights into living an independent and productive life.

An Asperger Marriage (Paperback)
Gisela Slater-Walker, Christopher Slater-Walker
Amazon.com Price: 19.95

This book is an open and honest account of a long and still unfinished process of learning to live with a disability that some regard as incompatible with marriage. It is a story whose wider implications will be of compelling interest to anyone who has encountered autism spectrum conditions.

Asperger Syndrome in Adolescence: Living with the Ups, the Downs and Things in Between (Paperback)
Liane Holliday Willey (editor), Luke Jackson
Amazon.com Price: $ 13.57

This book tackles issues that are pertinent to
all teenagers as well as those specific to those
with AS. Contributors include professionals such
as Tony Attwood along with parents, teachers,
and people on the spectrum.

Asperger’s Syndrome: Kenneth’s Book: The Universe And Everything (Paperback)
Kenneth Hall
Amazon.com Price: $ 11.66

“While it is relatively easy for an Asperger adult to find resources that make the world more clear, it is often a difficult journey for our children to find much of anything they can relate to. No more! This book is a must-have for any young person who wants to hear in clear tones, what AS is.”

Asperger’s: What Does It Mean to Me?
Catherine Faherty, Dr Gary Mesibov
Amazon.com Price: $ 25.17

“Singularly the most thorough, sensitive resource to help children with autism spectrum disorders understand their strengths, personalities, and unique challenges.
Also equally effective in helping parents and professionals understand aspects of a child’s personality that they may not already be aware of.”
Carol Gray, author of Social Stories.

Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome, Second Edition (Paperback)

Stephen M. Shore, Ed.D.
Amazon.com Price: $ 14.93

The author was diagnosed at age four with “atypical development with strong autistic tendencies.” He is currently completing his doctorate in special education at Boston University with a focus on helping people on the autism spectrum realize their fullest potential. “Stephen’s words softened my heart. They made me proud to be a fellow aspie.” Liane Holliday Willey, Ed.D. Author of Pretending to be Normal

Congratulations! It’s Asperger Syndrome
Jen Birch
Amazon.com Price: $13.97

Diagnosed with Asperger Syndrome in adulthood, Jen Birch relates her story with humor and honesty, taking us through the years of frustration and confusion that led to her diagnosis.


The Curious Incident of the Dog in the Night-Time

Mark Haddon
Amazon.com Price: $16.29

Christopher John Francis Boone knows all the countries of the world and their capitals and every prime number up to 7,057. He relates well to animals but has no understanding of human emotions. He cannot stand to be touched. Although gifted with a superbly logical brain, Christopher is autistic. Sound familiar? Many people on the spectrum, family members and others in their lives feel that this book has touched a cord and is also an enjoyable read.

A Different Kind of Boy: A Father’s Memoir about Raising a Gifted Child with Autism
Daniel Mont
Amazon.com Price: $21.95

A father writes about the joys, fears, frustration, exhilaration, and exhaustion involved in raising his son. The book describes a nine-year-old boy looking down at the gymnasium floor in a room filled with children who like and respect him, yet he can barely name anyone in his class, he has trouble with the simplest things – recognizing people, pretending, and knowing when people are happy or sad. But he was only one of seven fourth graders in the United States to ace the National Math Olympiad. In fifth grade he finished second in a national math talent search. That boy is autistic, loving, brilliant and resilient.

Elijah’s Cup: A Family’s Journey Into The Community And Culture Of High-Functioning Autism And Asperger’s Syndrome
Valerie Paradiz
Amazon.com Price: $11.53

This expressive and deeply felt memoir explores how the diagnosis of the author’s son, Elijah, with Asperger’s syndrome/HFA changed her life. Paradiz, an assistant professor of German studies at Bard College, details the subsequent dissolution of her marriage and her own depression, events triggered by the problems of coping with Elijah’s needs. She describes their time together at Autreat, a camp for autistics that emphasizes self-advocacy. This is a moving personal story that highlights a new way of thinking about people diagnosed as autistic. “Publishers Weekly”

Valerie Paradiz is the co-founder and director of the School for Autistic Strength Purpose and Independence in Education (ASPIE). She is on the board
of directors of the Global Regional Asperger Syndrome Partnership (GRASP).

This revised edition includes a contribution from Elijah and a new chapter that brings the story up to date: the author successfully sets up a specialist educational unit for Asperger pupils, Elijah experiences his first two years
of school, and the author’s dawning recognition of her own Asperger’s Syndrome leads to major life changes.

Exiting Nirvana: A Daughter’s Life with Autism
Clara Claiborne Park, Oliver Sacks
Amazon.com Price: $ 10.17

From an online review….. In addition to her own feelings, Jessy’s mother uses Jessy’s own quotations and poems to try and help others understand her daughter’s world. Like another relatively well-known autistic, Temple Grandin, Jessy is a “high-functioning” autistic. She can hold down a job, she has had art exhibitions of her drawings and she attended school for many years. Still, her world is far from what most of us would call normal and her social interactions with people outside her family are still rather limited…

Freaks, Geeks, and Asperger Syndrome: A User Guide to Adolescence
Luke Jackson, Tony Attwood
Amazon.com Price: $12.89

Jackson, a 13-year-old from the UK, is one of seven children. He has Asperger Syndrome (AS), one of his brothers has AD/HD, and another is autistic. Jackson’s conversational and humorous text offers helpful insights into the challenges faced by those with AS, on such topics as fascinations and fixations, sensory perception, diet, sleep, teenage language, problems with socializing at school, homework, dealing with bullies, dating, and moral dilemmas. Written for adolescents with AS, and for their parents. From Book News, Inc.

Loving Mr. Spock: Understanding an Aloof Lover: Could It Be Asperger’s?
Barbara Jacobs
Amazon.com Price: $13.57

This book, written by a psychologist, lecturer, and one of the most respected advice columnists in the UK explores her relationship with a man with Asperger Syndrome. It is written with eloquence and enormous emotion, and combines clinical information with an engaging and difficult story.

Nobody Nowhere : The Extraordinary Autobiography of an Autistic
Donna Williams
Amazon.com Price: $ 11.20

The author was 25 years old when she learned her real condition was called autism. She reveals her fierce intelligence, creativity, and sense of humor as she details her attempt to come to terms with autism and her struggle to merge “my world” with “the world”.

Pretending to be Normal: Living with Asperger’s Syndrome
Liane Holliday Willey
Amazon.com Price: $ 12.89

The author and her young daughter have Asperger Syndrome. Willey compares her own experiences with her daughter’s, her daughter’s with her twin sister, who doesn’t have AS, and the childhood peak in intensity of her daughter’s symptoms with her own waning symptoms in middle age. Her life story provides a startling look at how those with the syndrome experience the world. (Kirkus Reviews)

Right Address… Wrong Planet: Children with Asperger Syndrome Becoming Adults
Gena P. Barnhill
Amazon.com Price: $14.93

In this exciting new book on Asperger Syndrome, a mother who also holds a doctoral degree in autism spectrum disorders, relates the difficulties of her son with AS. A mother’s account is rounded out by the perspectives of Brent, her adult son with AS, her husband and family members and others who have Asperger Syndrome.

Songs of the Gorilla Nation: My Journey Through Autism
Dawn Prince Hughes, Ph.D.
Amazon.com Price: $10.36

In this elegant and thought-provoking memoir, the author traces her personal growth from undiagnosed autism to the moment when, as a young woman, she entered the Seattle Zoo and immediately became fascinated with the gorillas.

Soon Will Come the Light : A View from Inside the Autism Puzzle
Thomas A. McKean
Amazon.com Price: $ 13.57

Reviewed by the President of the Autism Society of Wisconsin, “Thomas A. McKean has successfully provided the reader with a new wealth of insight into areas known only to those individuals with autism. Parents, hungry for greater understanding of their children with autism, will ravenously devour this wonderful autobiography…..the book is divided into two sections. Section One consists of six chapters about his life with autism. Original poetry is sprinkled throughout, beginning with “Soon Will Come The Light,” which introduces the dominant book themes of fear, loneliness, love, and escape.

Succeeding with Autism: Hear My Voice
Judith H. Cohen
Amazon.com Price: $ 13.57

Among a growing literature of first person books about the life experiences of individuals on the Autism spectrum, this account stands out because of the additional perspectives of so many significant people and the comparison of these perspectives on the same events and times. Lynda Geller, Ph.D.

Thorn in My Pocket: Temple Grandin’s Mother Tells the Family Story
Eustacia Cutler

Amazon.com Price: $16.47

The mother of one of the most inspiring and vocal members of our community writes about growing up with Temple Grandin.

Through the Eyes of Aliens : A Book About Autistic People
Jasmine Lee O’Neill
Amazon.com Price: $ 19.95

This is a rich and positive description of how it feels to be autistic and how friends, family and the professionals that work with autistic people can be more sensitive to their needs. Jasmine Lee O’Neill, autistic herself, perceives the creativity, imagination and keenly-felt sensory world of the autistic person as gifts. She argues that ‘normalizing’ autistic people – pushing them into behaving in a way that is alien to their true natures – is not just ineffective but wrong. In this vivid and enjoyable book, she challenges the reader to accept their difference and to celebrate their uniqueness.

Your Life is Not a Label: A Guide to Living Fully with Autism and Asperger’s Syndrome
Jerry Newport
Amazon.com Price: $12.57

An encouraging, educational, and often humorous guide for teens and adults living with Asperger’s Syndrome or high-functioning autism. Jerry, a man with autism, gives advice on dating, money, traveling independently and more! This clever book will help others live fuller, more independent lives.
Forward by Ron Bass, Academy Award Winner for Rain Man.

 

 

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